🌻 Caregiver Resource Directory
Caregiving can feel overwhelming, especially when you are trying to manage appointments, treatment decisions, exhaustion, finances, and everyday life all at once.
This directory brings trusted caregiver organizations, prostate cancer resources, support programs, and practical assistance together in one place. Use the sections below to find the kind of help you need.
Resources and eligibility requirements can change. Please contact each organization directly for the most current information.
Not Sure Where to Begin?
Choose the type of help you need:
Emotional support and caregiver guidance
Start with Caregiver Support & Education
Prostate cancer information and support groups
Go to Prostate Cancer Support
Help with treatment costs, medication, or insurance
Go to Financial Assistance
Employment rights, legal documents, or disability benefits
Go to Insurance and Legal Help
Transportation or lodging during treatment
Go to Transportation and Lodging
Help supporting children or teenagers
Go to Children and Teens
Grief support
Go to Grief and Bereavement
Palliative care or hospice information
Go to Palliative Care and Hospice
Clinical trials and research
Go to Clinical Trials and Research
LGBTQ+ support
Go to LGBTQ+ Resources
🌻 Caregiver Support & Education
Tips for caring for a loved one with cancer, managing caregiving responsibilities, financial planning, and emotional support.
Education, peer support, and practical caregiver resources.
Practical guides to help caregivers manage healthcare transitions, hospital discharges, and medical appointments.
Support for spouses and partners caring for a loved one with chronic illness or disability.
🌻 Caregiver Coordination & Communication
A free website that helps families communicate updates, organize support, and stay connected during illness.
💙Prostate Cancer Support
These organizations provide education, support groups, treatment information, patient advocacy, and practical resources for men diagnosed with prostate cancer and the partners and caregivers who support them.
Support groups, educational programs, financial assistance resources, advocacy, and information for patients and families.
🌻Active Surveillance Patients International (ASPI)
Education and support for men choosing Active Surveillance as a management strategy for prostate cancer.
Peer-to-peer support groups led by patients and caregivers covering many aspects of prostate cancer, including Active Surveillance, advanced disease, and treatment decision-making.
🌻 Prostate Cancer Research Institute (PCRI)
Educational videos, webinars, patient conferences, and practical information on prostate cancer diagnosis and treatment.
🌻PC-PEP (Prostate Cancer Patient Empowerment Program)
A free six-month home-based program focusing on exercise, nutrition, mental health, stress reduction, and overall wellness for men living with prostate cancer.
Research-based information about prostate cancer, treatment options, nutrition, survivorship, and patient resources.
Educational resources, treatment information, research updates, and patient support services.
Research-based information about prostate cancer, treatment options, nutrition, survivorship, and patient resources.
During my husband's prostate cancer journey, we found ourselves relying on many different sources of information. These organizations consistently provide reliable, evidence-based information and support for both patients and caregivers.
💵Financial Assistance
Cancer can affect much more than physical health. Treatment costs, travel expenses, time away from work, insurance challenges, and out-of-pocket medical expenses can create significant financial stress for patients and caregivers. The organizations below may be able to provide financial assistance, guidance, and support.
💵 Cancer Financial Assistance Coalition
A searchable database of national and local organizations that provide financial assistance to cancer patients and families.
Provides case management services and helps patients resolve insurance, employment, and financial issues related to cancer.
Provides financial assistance for insurance premiums, copays, deductibles, and out-of-pocket healthcare expenses.
💵 Partnership for Prescription Assistance
Helps patients locate prescription assistance programs that may reduce medication costs.
💵Patient Access Network (PAN) Foundation
Provides financial assistance for out-of-pocket medication costs and treatment expenses.
💵 RxAssist
Provides information about prescription assistance programs and medication affordability resources.
💵 Prostate Cancer Foundation Financial Resources
Information about financial assistance programs and resources available to prostate cancer patients and families.
💵 Social Security Disability
Information about disability benefits and eligibility for individuals unable to work due to illness.
A Note from Me
One of the lessons I learned as a caregiver is that it is important to ask for help, even when it feels uncomfortable. Financial assistance programs change frequently, and each organization has different eligibility requirements. If one program cannot help, another one may. Do not assume that a "no" from one organization means there are no options available.
⚖️Insurance and Legal Help
Cancer often brings questions about health insurance, employment protections, disability benefits, advance care planning, and legal documents. The resources below can help patients and caregivers better understand their rights, benefits, and available options.
Information about health insurance options, enrollment, coverage, and financial assistance.
Provides case management services and assistance with insurance, employment, and financial issues related to serious illness.
Cancer Legal Resource Center
Provides information on legal rights, employment issues, insurance, disability benefits, and advance planning.
American Bar Association – Health Law Section
Resources and guidance on healthcare law and patient rights
U.S. Department of Labor – Family and Medical Leave Act (FMLA)
Information about job-protected leave for eligible employees caring for family members with serious health conditions
Job Accommodation Network (JAN)
Guidance on workplace accommodations and disability-related employment issues.
Helps families discuss healthcare wishes and medical decision-making before a crisis occurs.
National Institute on Aging – Advance Care Planning
Resources for advance directives, healthcare proxies, and medical decision-making.
Transportation and Lodging
Travel for cancer treatment can create additional stress, expenses, and logistical challenges for patients and caregivers. The organizations below may help with transportation, lodging, and travel-related support during treatment.
Provides free air transportation on corporate aircraft for cancer patients traveling to treatment.
Provides free transportation assistance through volunteer pilots, commercial airline tickets, gas cards, and other travel programs.
A nationwide network of volunteer pilot organizations providing free air transportation for medical needs
American Cancer Society Road To Recovery
Volunteer drivers help transport cancer patients to and from treatment appointments.
Helps coordinate rides, meals, and support from family and friends.
American Cancer Society Hope Lodge
Provides free lodging for cancer patients and caregivers who must travel for treatment.
A nationwide lodging directory helping patients and caregivers find discounted accommodations near treatment centers.
Patient Travel Assistance Programs
Many cancer centers, hospitals, nonprofit organizations, and local support groups offer travel assistance programs. Ask your healthcare team, oncology social worker, or patient navigator about resources available in your area.
A Note from Me
When my husband was receiving treatment, we traveled several times and it was approximately 200 miles each way for appointments and care. Travel costs, lodging, meals, and time away from home can quickly add up. Do not hesitate to ask your treatment center whether travel assistance programs are available. Many caregivers are surprised to learn that help exists.
🧒Children and Teens
When cancer affects a parent, grandparent, or caregiver, children and teens often have questions, fears, and emotions they may not know how to express. These organizations provide support, education, and programs designed specifically for children, teens, young adults, and families affected by serious illness.
Camp Kasem
A free camp and support community for children impacted by a parent's cancer.
Provides professional support and resources to help children and teens cope with a parent's serious illness.
Peer-to-peer support for children and families navigating the illness or loss of a parent.
National Alliance for Children’s Grief
Provides grief support resources, education, and connections to local programs for children and teens.
A Note from Me
Children often know more than adults realize. They may hear conversations, notice changes in routines, or sense when something is wrong. Honest, age-appropriate communication and access to support can help children feel safer and less alone during a family's cancer journey.
💜Grief and Bereavement
Grief can begin long before a loss occurs. Caregivers often experience grief during diagnosis, treatment, recurrence, declining health, and after the death of a loved one. The organizations below provide education, support groups, counseling resources, and practical guidance for navigating grief and loss.
GriefShare
Offers grief support groups, educational materials, and community-based programs for people grieving the loss of a loved one.
Heal Grief
Offers online grief support, memorial resources, and practical guidance for those experiencing loss.
Provides online grief support groups, workshops, and educational resources.
My Grief Angels
Peer-led grief support groups and online grief resources.
GriefHaven
Educational materials, support resources, and grief recovery programs.
A Note from Me
There is no right way to grieve and no timetable for healing. Grief can affect emotions, relationships, physical health, concentration, sleep, and daily routines. If you are struggling, please reach out for support. You do not have to carry grief alone.
🕊️Palliative Care and Hospice
Palliative care and hospice services focus on comfort, quality of life, symptom management, emotional support, and helping patients and families navigate serious illness. Many people are surprised to learn that palliative care can be provided alongside cancer treatment and is not limited to end-of-life care.
CareInfo
Provides free information about advance care planning, caregiving, hospice, palliative care, and end-of-life decision making.
Helps patients and families understand palliative care services and locate providers in their area.
Provides education, support, and resources related to hospice care, caregiving, grief, and end-of-life issues.
National Hospice and Palliative Care Organization (NHPCO) I
nformation about hospice services, palliative care, advance care planning, and caregiver support.
Hospice Net
Educational resources covering hospice care, caregiving, grief, and end-of-life planning.
A Note from Me
Many families wait too long to ask about palliative care because they believe it means giving up treatment. In reality, palliative care often provides additional support for managing symptoms, improving quality of life, and helping both patients and caregivers navigate difficult decisions. Understanding available options early can make a significant difference for everyone involved.
🔬Clinical Trials and Research
A comprehensive database of clinical trials conducted throughout the United States and around the world.
CenterWatch
Provides information about clinical trials, research studies, and opportunities for participation.
National Cancer Institute (NCI)
Information about cancer research, treatment advances, clinical trials, and cancer-related education
Research updates, treatment advances, and information about emerging therapies in prostate cancer.
Research updates, clinical trials, and educational resources focused on cancer treatment and survivorship.
Prostate Cancer Research Institute (PCRI)
Educational programs, patient conferences, treatment updates, and research information.
A Note from Me
Not every clinical trial is appropriate for every patient, but learning about available research can help families have more informed conversations with their healthcare team. If you are interested in a clinical trial, speak with your physician about whether it may be a good fit for your situation.
🏳️🌈LGBTQ+ Resources
Prostate cancer affects individuals and families from every background. These organizations provide information, support, advocacy, and community specifically for LGBTQ+ individuals, couples, caregivers, and families affected by cancer.
National LGBT Cancer Network
Education, advocacy, cancer screening information, and support resources for LGBTQ+ individuals affected by cancer.
Smith Center for Healing and the Arts
Provides cancer support programs, educational resources, and support groups, including programs serving LGBTQ+ individuals affected by cancer and Gay Men with Prostate Cancer Support Group is a support community for gay, bisexual, and transgender individuals affected by prostate cancer and their partners.
CancerCare LGBTQ+ Support Resources
Professional counseling, educational workshops, support groups, and resources for LGBTQ+ individuals and caregivers affected by cancer.
FORGE
Resources, advocacy, and support for transgender and nonbinary individuals navigating healthcare and serious illness.
A Note from Me
Partners and caregivers come from many different backgrounds and family structures. Every caregiver deserves access to information, support, and resources that reflect their experiences and help them feel seen, respected, and understood.
🌍 Additional Cancer Resources
The organizations below provide general cancer information, education, support services, advocacy, and resources for patients, caregivers, and families affected by cancer.
American Cancer Society
Information about cancer diagnosis, treatment, side effects, caregiving, survivorship, transportation programs, lodging assistance, and support services.
Website: https://www.cancer.org
National Cancer Institute (NCI)
Comprehensive cancer information, treatment resources, research updates, clinical trials, and educational materials.
Website: https://www.cancer.gov
Cancer Support Community
Free support groups, educational programs, counseling resources, and patient navigation services.
Website: https://www.cancersupportcommunity.org
CancerCare
Professional oncology social workers provide counseling, support groups, educational workshops, financial assistance, and caregiver resources.
Website: https://www.cancercare.org
Gilda's Club
Community-based cancer support offering educational programs, support groups, and wellness activities for patients and families.
Website: https://www.gildasclub.org
Cancer Hope Network
Provides one-on-one peer support by connecting patients and caregivers with trained volunteers who have experienced a similar cancer journey.
Website: https://www.cancerhopenetwork.org
Livestrong Foundation
Resources focused on survivorship, navigation, fertility preservation, financial concerns, and quality of life after a cancer diagnosis.
Website: https://www.livestrong.org
MyLifeLine
A free online platform that helps patients and caregivers communicate updates, organize support, and stay connected with family and friends.
Website: https://www.mylifeline.org
A Note from Me
No single organization has all the answers. During a cancer journey, different resources may be helpful at different times. If one organization does not provide what you need, keep looking. Support often comes from a combination of educational resources, support groups, healthcare professionals, and other caregivers who understand what you are experiencing.
🌻 Know a Resource We Should Add?
If you are aware of a reputable organization or resource that has helped you as a patient, partner, caregiver, or family member, please contact me. I am always looking to expand this Resource Center so that it remains useful to others navigating the cancer journey.
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🌻 Created by Debra Othman
Author of Standing Beside Him: A Partners/Spouses Guide
Founder, The Caregiver Education Center
© 2026 Debra Othman. These materials may be printed and shared for personal use, caregiver education, healthcare organizations, and nonprofit support groups. Commercial reproduction or resale