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🌻 Caregiver Support & Education

These organizations focus specifically on supporting family caregivers and helping them navigate the emotional and practical challenges of caregiving.

🌻 AARP Caregiver Resources

Website: https://www.aarp.org/caregiving/care-guides/cancer/

Tips for caring for a loved one with cancer, managing caregiving responsibilities, financial planning, and emotional support.

🌻 Caregiver Action Network

Website: https://www.caregiveraction.org

Education, peer support, and practical caregiver resources.

🌻 Family Caregiver Alliance

Website: https://www.caregiver.org

Information, education, support groups, and resources for family caregivers.

🌻 National Family Caregiver Association

Website: https://www.nfcacares.org

Resources, education, and support for caregivers and families. Note: This organization was formerly known as the National Family Caregivers Association and is now part of the Caregiver Action Network. You may choose to remove this entry to avoid duplication.

🌻 Next Step in Care

Website: https://www.nextstepincare.org

Practical guides to help caregivers manage healthcare transitions, hospital discharges, and medical appointments.

🌻 Well Spouse Association

Website: https://www.wellspouse.org

Support for spouses and partners caring for a loved one with chronic illness or disability. Phone: 732-577-8899

🌻 Caregiver Coordination & Communication

🌻 CaringBridge

Website: https://www.caringbridge.org

A free website that helps families communicate updates, organize support, and stay connected during illness. Phone: 651-452-7940

🌻 My Cancer Circle

Website: https://www.mycancercircle.com

Helps caregivers organize meals, transportation, appointments, and other support needs.

💙Prostate Cancer Support

These organizations provide education, support groups, treatment information, patient advocacy, and practical resources for men diagnosed with prostate cancer and the partners and caregivers who support them.

ZERO Prostate Cancer

Support groups, educational programs, financial assistance resources, advocacy, and information for patients and families.

Website: https://www.zerocancer.org

AnCan

Peer-to-peer support groups led by patients and caregivers covering many aspects of prostate cancer, including Active Surveillance, advanced disease, and treatment decision-making.

Website: https://ancan.org/groups

Prostate Cancer Foundation

Research-based information about prostate cancer, treatment options, nutrition, survivorship, and patient resources.

Website: https://www.pcf.org

National Comprehensive Cancer Network (NCCN) Patient Resources

Free patient-friendly treatment guides that explain prostate cancer and treatment options in plain language.

Website: https://www.nccn.org/patientresources

Prostate Cancer Research Institute (PCRI)

Educational videos, webinars, patient conferences, and practical information on prostate cancer diagnosis and treatment.

Website: https://pcri.org

Active Surveillance Patients International (ASPI)

Education and support for men choosing Active Surveillance as a management strategy for prostate cancer.

Website: https://aspatients.org

PC-PEP (Prostate Cancer Patient Empowerment Program)

A free six-month home-based program focusing on exercise, nutrition, mental health, stress reduction, and overall wellness for men living with prostate cancer.

Website: https://pcpep.org

Fred Hutch Cancer Center

Educational resources, treatment information, research updates, and patient support services.

Website: https://www.fredhutch.org

During my husband's prostate cancer journey, we found ourselves relying on many different sources of information. These organizations consistently provide reliable, evidence-based information and support for both patients and caregivers.

💵Financial Assistance

Cancer can affect much more than physical health. Treatment costs, travel expenses, time away from work, insurance challenges, and out-of-pocket medical expenses can create significant financial stress for patients and caregivers. The organizations below may be able to provide financial assistance, guidance, and support.

💵 Cancer Financial Assistance Coalition

Website: https://www.cancerfac.org

A searchable database of national and local organizations that provide financial assistance to cancer patients and families.

💵 Patient Advocate Foundation

Website: https://www.patientadvocate.org

Provides case management services and helps patients resolve insurance, employment, and financial issues related to cancer.

Phone: 1-800-532-5274

💵 HealthWell Foundation

Website: https://www.healthwellfoundation.org

Provides financial assistance for insurance premiums, copays, deductibles, and out-of-pocket healthcare expenses.

Phone: 1-800-675-8416

💵 Patient Access Network (PAN) Foundation

Website: https://www.panfoundation.org

Provides financial assistance for out-of-pocket medication costs and treatment expenses.

Phone: 866-316-7263

💵 Partnership for Prescription Assistance

Website: https://www.pparx.org

Helps patients locate prescription assistance programs that may reduce medication costs.

Phone: 888-477-2669

💵 RxAssist

Website: https://www.rxassist.org/patients

Provides information about prescription assistance programs and medication affordability resources.

💵 Social Security Disability

Website: https://www.ssa.gov

Information about disability benefits and eligibility for individuals unable to work due to illness.

Phone: 800-772-1213

💵 Prostate Cancer Foundation Financial Resources

Website: https://www.pcf.org

Information about financial assistance programs and resources available to prostate cancer patients and families.

A Note from Me

One of the lessons I learned as a caregiver is that it is important to ask for help, even when it feels uncomfortable. Financial assistance programs change frequently, and each organization has different eligibility requirements. If one program cannot help, another one may. Do not assume that a "no" from one organization means there are no options available.

⚖️Insurance and Legal Help

Cancer often brings questions about health insurance, employment protections, disability benefits, advance care planning, and legal documents. The resources below can help patients and caregivers better understand their rights, benefits, and available options.

Insurance & Healthcare Access

HealthCare.gov
https://www.healthcare.gov

Information about health insurance options, enrollment, coverage, and financial assistance.

Health Insurance Literacy Resources
https://www.healthinsurance.org

Helps patients and caregivers understand health insurance benefits, coverage, and claims.

Patient Advocate Foundation
https://www.patientadvocate.org

Provides case management services and assistance with insurance, employment, and financial issues related to serious illness.

Legal Assistance

Cancer Legal Resource Center
https://www.cancerlegalresourcecenter.org

Provides information on legal rights, employment issues, insurance, disability benefits, and advance planning.

American Bar Association – Health Law Section
https://www.americanbar.org/groups/health_law/

Resources and guidance on healthcare law and patient rights.

Employment & Workplace Rights

U.S. Department of Labor – Family and Medical Leave Act (FMLA)
https://www.dol.gov/agencies/whd/fmla

Information about job-protected leave for eligible employees caring for family members with serious health conditions.

Job Accommodation Network (JAN)
https://askjan.org

Guidance on workplace accommodations and disability-related employment issues.

Disability Benefits

Social Security Administration
https://www.ssa.gov

Information on Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI).

Advance Care Planning

Everplans
https://www.everplans.com

Tools and guidance for organizing important medical, legal, and financial information.

CaringInfo
https://www.caringinfo.org

Free advance directive forms, healthcare planning resources, and end-of-life planning information.

Healthcare Decision Making

The Conversation Project
https://theconversationproject.org

Helps families discuss healthcare wishes and medical decision-making before a crisis occurs.

National Institute on Aging – Advance Care Planning
https://www.nia.nih.gov/health/advance-care-planning

Resources for advance directives, healthcare proxies, and medical decision-making.

Transportation and Lodging

Travel for cancer treatment can create additional stress, expenses, and logistical challenges for patients and caregivers. The organizations below may help with transportation, lodging, and travel-related support during treatment.

Air Transportation Assistance

Corporate Angel Network

Provides free air transportation on corporate aircraft for cancer patients traveling to treatment.

Website: https://www.corpangelnetwork.org

Mercy Medical Angels

Provides free transportation assistance through volunteer pilots, commercial airline tickets, gas cards, and other travel programs.

Website: https://www.mercymedical.org

Air Care Alliance

A nationwide network of volunteer pilot organizations providing free air transportation for medical needs.

Website: https://www.aircarealliance.org

Ground Transportation

American Cancer Society Road To Recovery

Volunteer drivers help transport cancer patients to and from treatment appointments.

Website: https://www.cancer.org

My Cancer Circle

Helps coordinate rides, meals, and support from family and friends.

Website: https://www.mycancercircle.net

Lodging Assistance

American Cancer Society Hope Lodge

Provides free lodging for cancer patients and caregivers who must travel for treatment.

Website: https://www.cancer.org

Joe's House

A nationwide lodging directory helping patients and caregivers find discounted accommodations near treatment centers.

Website: https://www.joeshouse.org

Ronald McDonald House Charities

Provides lodging and support for families of seriously ill children receiving treatment away from home.

Website: https://rmhc.org

Additional Travel Resources

Patient Travel Assistance Programs

Many cancer centers, hospitals, nonprofit organizations, and local support groups offer travel assistance programs. Ask your healthcare team, oncology social worker, or patient navigator about resources available in your area.

A Note from Me

When my husband was receiving treatment, we traveled several times and it was approximately 200 miles each way for appointments and care. Travel costs, lodging, meals, and time away from home can quickly add up. Do not hesitate to ask your treatment center whether travel assistance programs are available. Many caregivers are surprised to learn that help exists.

🧒Children and Teens

When cancer affects a parent, grandparent, or caregiver, children and teens often have questions, fears, and emotions they may not know how to express. These organizations provide support, education, and programs designed specifically for children, teens, young adults, and families affected by serious illness.

Camp Kesem

A free camp and support community for children impacted by a parent's cancer.

Website: https://www.campkesem.org

Wonders & Worries

Provides professional support and resources to help children and teens cope with a parent's serious illness.

Website: https://www.wondersandworries.org

Pickles Group

Peer-to-peer support for children and families navigating the illness or loss of a parent.

Website: https://www.picklesgroup.org

Bright Spot Network

Supports young children and families facing a parent's cancer diagnosis.

Website: https://www.brightspotnetwork.org

The Children's Treehouse Foundation

Provides programs that help children understand and cope with a parent's cancer diagnosis.

Website: https://childrenstreehousefdn.org

CancerCare for Kids

Offers counseling, educational resources, and support programs for children and teens affected by cancer in the family.

Website: https://www.cancercare.org/tagged/children

National Alliance for Children's Grief

Provides grief support resources, education, and connections to local programs for children and teens.

Website: https://childrengrieve.org

A Note from Me

Children often know more than adults realize. They may hear conversations, notice changes in routines, or sense when something is wrong. Honest, age-appropriate communication and access to support can help children feel safer and less alone during a family's cancer journey.

💜Grief and Bereavement

Grief can begin long before a loss occurs. Caregivers often experience grief during diagnosis, treatment, recurrence, declining health, and after the death of a loved one. The organizations below provide education, support groups, counseling resources, and practical guidance for navigating grief and loss.

GriefShare

Offers grief support groups, educational materials, and community-based programs for people grieving the loss of a loved one.

Website: https://www.griefshare.org

The Dougy Center

Provides grief support resources for children, teens, young adults, and families.

Website: https://www.dougy.org

HealGrief

Offers online grief support, memorial resources, and practical guidance for those experiencing loss.

Website: https://healgrief.org

Grief in Common

Provides online grief support groups, workshops, and educational resources.

Website: https://griefincommon.com

My Grief Angels

Peer-led grief support groups and online grief resources.

Website: https://www.mygriefangels.org

Grief Haven

Educational materials, support resources, and grief recovery programs.

Website: https://griefhaven.org

David Kessler

Resources, articles, grief education, and support programs from grief expert David Kessler.

Website: https://grief.com

Center for Loss & Life Transition

Educational resources and support related to grief, mourning, and healing.

Website: https://www.mourning.com

Crisis Support

988 Suicide & Crisis Lifeline

Call or text 988 for immediate emotional support and crisis assistance.

Website: https://988lifeline.org

Crisis Text Line

Text HOME to 741741 to connect with a trained crisis counselor.

Website: https://www.crisistextline.org

A Note from Me

There is no right way to grieve and no timetable for healing. Grief can affect emotions, relationships, physical health, concentration, sleep, and daily routines. If you are struggling, please reach out for support. You do not have to carry grief alone.

🕊️Palliative Care and Hospice

Palliative care and hospice services focus on comfort, quality of life, symptom management, emotional support, and helping patients and families navigate serious illness. Many people are surprised to learn that palliative care can be provided alongside cancer treatment and is not limited to end-of-life care.

CaringInfo

Provides free information about advance care planning, caregiving, hospice, palliative care, and end-of-life decision making.

Website: https://www.caringinfo.org

Get Palliative Care

Helps patients and families understand palliative care services and locate providers in their area.

Website: https://getpalliativecare.org

Center to Advance Palliative Care (CAPC)

Educational resources explaining palliative care, symptom management, and family support.

Website: https://www.capc.org

Hospice Foundation of America

Provides education, support, and resources related to hospice care, caregiving, grief, and end-of-life issues.

Website: https://hospicefoundation.org

National Hospice and Palliative Care Organization (NHPCO)

Information about hospice services, palliative care, advance care planning, and caregiver support.

Website: https://www.nhpco.org

Hospice Net

Educational resources covering hospice care, caregiving, grief, and end-of-life planning.

Website: https://www.hospicenet.org

Compassion & Choices

Resources and education related to advance care planning, healthcare decisions, and end-of-life choices.

Website: https://compassionandchoices.org

A Note from Me

Many families wait too long to ask about palliative care because they believe it means giving up treatment. In reality, palliative care often provides additional support for managing symptoms, improving quality of life, and helping both patients and caregivers navigate difficult decisions. Understanding available options early can make a significant difference for everyone involved.

🔬Clinical Trials and Research

Clinical trials help researchers develop new treatments, improve existing therapies, and advance cancer care. Patients and caregivers interested in learning more about research studies and emerging treatment options may find the following resources helpful.

ClinicalTrials.gov

A comprehensive database of clinical trials conducted throughout the United States and around the world.

Website: https://clinicaltrials.gov

CenterWatch

Provides information about clinical trials, research studies, and opportunities for participation.

Website: https://www.centerwatch.com

National Cancer Institute (NCI)

Information about cancer research, treatment advances, clinical trials, and cancer-related education.

Website: https://www.cancer.gov

Prostate Cancer Foundation (PCF)

Research updates, treatment advances, and information about emerging therapies in prostate cancer.

Website: https://www.pcf.org

Fred Hutch Cancer Center

Research updates, clinical trials, and educational resources focused on cancer treatment and survivorship.

Website: https://www.fredhutch.org

Prostate Cancer Research Institute (PCRI)

Educational programs, patient conferences, treatment updates, and research information.

Website: https://pcri.org

A Note from Me

Not every clinical trial is appropriate for every patient, but learning about available research can help families have more informed conversations with their healthcare team. If you are interested in a clinical trial, speak with your physician about whether it may be a good fit for your situation.

🏳️‍🌈LGBTQ+ Resources

Prostate cancer affects individuals and families from every background. These organizations provide information, support, advocacy, and community specifically for LGBTQ+ individuals, couples, caregivers, and families affected by cancer.

National LGBT Cancer Network

Education, advocacy, cancer screening information, and support resources for LGBTQ+ individuals affected by cancer.

Website: https://cancer-network.org

Smith Center for Healing and the Arts

Provides cancer support programs, educational resources, and support groups, including programs serving LGBTQ+ individuals affected by cancer.

Website: https://smithcenter.org

Gay Men with Prostate Cancer Support Group

A support community for gay, bisexual, and transgender individuals affected by prostate cancer and their partners.

Website: Available through the Smith Center for Healing and the Arts.

CancerCare LGBTQ+ Support Resources

Professional counseling, educational workshops, support groups, and resources for LGBTQ+ individuals and caregivers affected by cancer.

Website: https://www.cancercare.org

FORGE

Resources, advocacy, and support for transgender and nonbinary individuals navigating healthcare and serious illness.

Website: https://forge-forward.org

A Note from Me

Partners and caregivers come from many different backgrounds and family structures. Every caregiver deserves access to information, support, and resources that reflect their experiences and help them feel seen, respected, and understood.

🌍 Additional Cancer Resources

The organizations below provide general cancer information, education, support services, advocacy, and resources for patients, caregivers, and families affected by cancer.

American Cancer Society

Information about cancer diagnosis, treatment, side effects, caregiving, survivorship, transportation programs, lodging assistance, and support services.

Website: https://www.cancer.org

National Cancer Institute (NCI)

Comprehensive cancer information, treatment resources, research updates, clinical trials, and educational materials.

Website: https://www.cancer.gov

Cancer Support Community

Free support groups, educational programs, counseling resources, and patient navigation services.

Website: https://www.cancersupportcommunity.org

CancerCare

Professional oncology social workers provide counseling, support groups, educational workshops, financial assistance, and caregiver resources.

Website: https://www.cancercare.org

Gilda's Club

Community-based cancer support offering educational programs, support groups, and wellness activities for patients and families.

Website: https://www.gildasclub.org

Cancer Hope Network

Provides one-on-one peer support by connecting patients and caregivers with trained volunteers who have experienced a similar cancer journey.

Website: https://www.cancerhopenetwork.org

Livestrong Foundation

Resources focused on survivorship, navigation, fertility preservation, financial concerns, and quality of life after a cancer diagnosis.

Website: https://www.livestrong.org

MyLifeLine

A free online platform that helps patients and caregivers communicate updates, organize support, and stay connected with family and friends.

Website: https://www.mylifeline.org

A Note from Me

No single organization has all the answers. During a cancer journey, different resources may be helpful at different times. If one organization does not provide what you need, keep looking. Support often comes from a combination of educational resources, support groups, healthcare professionals, and other caregivers who understand what you are experiencing.

🌻 Know a Resource We Should Add?

If you are aware of a reputable organization or resource that has helped you as a patient, partner, caregiver, or family member, please contact me. I am always looking to expand this Resource Center so that it remains useful to others navigating the cancer journey.

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🎓 Expert Insight

Read articles, interviews, and practical guidance from healthcare professionals and experts who specialize in caregiving, prostate cancer, and family support.

Read Expert Advice

🌅 Life After Caregiving

Resources for life after caregiving, including grief support, rebuilding your life, emotional healing, and finding purpose after the caregiving journey ends.

Explore Life After Caregiving

🎒 School Resources

Resources to help children, teens, educators, and families understand cancer, cope with a loved one's illness, and find age-appropriate support.

View School Resources

📚 Recommended Books

Browse books recommended for caregivers, partners, patients, grief, communication, and personal well-being.

Browse Recommended Books

🌻 Created by Debra Othman
Author of Standing Beside Him: A Partners/Spouses Guide

Founder, The Caregiver Education Center

debraothman.com

© 2026 Debra Othman. These materials may be printed and shared for personal use, caregiver education, healthcare organizations, and nonprofit support groups. Commercial reproduction or resale is prohibited.